Posted on July 1, 2008 by benjamin67
So I am in an angry troll kind of mood.
Ethan had his second urodynamics test today, but I could not go because we had an emergency at work (it is 7:15pm as I write this…I am still at work…waiting for customer confirmation). The Urodynamics test is by far the most invasive test ever conceived of [...]
Filed under: Childhood, Life, VACTERL, Why, birth defects, depression, family, fatherhood, health, ia, imperferated anus, kids, mood | 5 Comments »
Posted on June 4, 2008 by benjamin67
Yesterday was Ethan’s clinical appointment day. Thanks to my new best friend Maggie (our GPS); we made it to DC Children’s in record time (45 minutes).
After waiting for about a half hour they took us to our room. The cool thing about Children’s is that they have a flat screen TV in every room. [...]
Filed under: Life, VACTERL, birth defects, fatherhood, health, stupid comments | 4 Comments »
Posted on June 1, 2008 by benjamin67
This week we have our Spina Bifida clinic appointment (they accept VACTERL patients too). He sees 5 specialists all at once. It is bound to be a multi-dread week. First of all, the only appointment we could get was on Jenn’s birthday, ugh. Two and three are more serious matters.
They took hip x-rays at his [...]
Filed under: VACTERL, birth defects, health, ia, mood | 4 Comments »
Posted on May 27, 2008 by benjamin67
I want noodle salad. Watch the clip and you will understand.
At my old church, I attended a Men’s retreat. We were in small groups and the leader asked everyone to share the greatest moment of their lives. Without exception, all of them said, the birth of their child. That my friend is noodle salad.
Now don’t [...]
Filed under: Christianity, Friendship, God, Grief, Life, VACTERL, Why, birth defects, depression, fake, family | 5 Comments »
Posted on May 7, 2008 by benjamin67
So…Yesterday…is over for now.
Ethan was scheduled for an MRI at 10:30. Since kids cannot sit still long enough for the test, they have to be given general anesthesia. So they wanted us to show up at 9:00 to do all the paperwork and pre-op stuff. We left the house a little after 7. It [...]
Filed under: Friendship, Life, Religion, VACTERL, Why, birth defects, civility, depression, health, helping, kids | 1 Comment »
Posted on May 5, 2008 by benjamin67
Tomorrow we are going to Ethan’s Spina Bifida clinic. When Ethan was a baby, we had 5-6 specialists that he saw on a regular basis. Each doctor wanted their own set of tests. It was Jenn’s full time job just lugging him around from appointment to appointment. Then there was the dread each time they [...]
Filed under: VACTERL, birth defects, health, kids, mood | 2 Comments »
